While I was in hospital, I was told for the first time that some of my tics were defined as “dystonic” movements. After being told that I found a really useful post on Touretteshero that helped to explain that a bit more for me. I think now I’ve got a pretty good handle on identifying certain types of tics, Jess is awesome for that!
Usually I find that computer gaming helps to relieve my tics to a point – often if things get too tense I will have to stop as it can have the opposite effect, but I’ve noticed that being distracted tends to reduce them. I also play bass to relieve the tics, that actually works better than gaming most of the time, but since my little stay in hospital I’ve been struggling to get the hard skin back on my fingers so my playtime on it is very limited.
Last night seemed to be an exception to the rule, I had been happily playing guitar and doing various musical things all day. A friend of mine bought me a game that I have been waiting for a long while to have the money for! It’s called DayZ, it’s a fairly unforgiving zombie survival game. At first things were fine – I had to deal with the usual problems I have playing first person games – hyper-extension tics taking me away from the keyboard, my mouse arm lurching around in all directions – and all of the other stuff that you can probably use your imagination work out. Then towards the end (I called it quits) my dystonic tics seemed to crank up a notch.
Very quickly I started finding myself contorted into various painful positions. Extending fully backwards to the point where muscles were locking/cramping, pushing my shoulders back hard and locking them in place, neck tics that felt like I was going to twist my head off of my shoulders. Then a little bit after that started my vocal tics went wild and I started getting an increase in the violence of the tics again on top of it all. It’s all fun and games until you lurch backwards and lock in place hard enough to tip your chair and land on your head, then because your back is locked keep banging your head on the floor until you can get up. That happened three times – the second time my chair rolled to the side while I was locked wedging me painfully between it and the sofa.
I ended up calling it quits at that point. And on waking up this morning and everything hurt! I must have strained all of my chest, neck and arm muscles during that patch. The tics were fairly average (for me at the moment) yesterday up until then. I checked and I definitely didn’t miss any Baclofen, I had the same amount of Diazepam I have on a normal day at the moment.
What a pain! I hope it doesn’t become a regular thing, that would drastically cut down my pool of stuff to amuse me while I’m stuck inside waiting for this wheelchair! On the bright side, I so have a rough delivery date now, they are aiming for the first of March. 🙂 Roll on (no pun intended) the times when I can GO OUTSIDE AGAIN!! 🙂
A friend shared this a while ago, sorry for nabbing it and using it, but it pretty much sums up how I felt this morning when I woke up to my usual involuntary morning exercises…