Minor update :)
It’s been a little over a fortnight now, I thought maybe it’s time for an update – before I procrastinate myself in to a hole again!
So far the results are great! Not going to build it up to be something it’s not – I am still having the full range of tics, still can’t walk without hurting my knees/head and still can’t handle hot things without beakers etc. The change is there though – I am noticeably calmer than beforehand!
To give an example for comparison, today I went to town with Holly. I did still need her behind my wheelchair because I was losing control from time to time because of the arching backwards and I still had to be incredibly careful not to kick people (legs still not the best at control!). A few months ago this would have been a much more major occasion! I have some minor aches and pains right now – but it doesn’t feel like I’ve been beaten up!
There have been some odd side effects though – trying to note stuff down when it occurs more than a couple of times or sticks around for a few days. First and foremost the vocal tics seem to be affected by the stimulation markedly less than the motor tics – Holly has taken to calling me “noisy” as a nickname! Other side effects have been things like:
- Getting panicky for little/no reason
- General “brain-fog”
It’s kinda late at night right now and I’m falling asleep – probably missing out loads that I wanted to get in to this post but I’m going to have to call it quits! My eyes are closing as I write this! As with other posts – it will not be published publicly for a while yet, not until I get the go-ahead anyway!