Deep Brain Stimulation posts published!
I have been given the go ahead to release my posts relating to the clinical trial for Deep Brain Stimulation, a treatment for Tourette Syndrome, which I was a participant in last year. I was asked to wait until the results were published, which has now happened, so – green light I guess!
There is an abstract/overview of the study available at thelancet.com.
It’s been a bumpy ride and I admittedly haven’t kept to my original goal very well of trying to document the process – largely because it was very strange feeling like I was posting to myself! But I hope that it is of help to somebody, or at the very least an interesting read! As the treatment is ongoing I am hoping to keep updating this blog.
Before you read the posts that I am releasing today, please bear the following in mind:
I cannot stress enough that these are my personal notes from involvement in the trial as a patient, I have no medical background and there may be any number of misunderstandings, incorrect opinions or incorrect information.
If you don’t want to go read down through the entire blog, here are links to the previously hidden/protected posts in order of the oldest to the most recent:
- DBS – The Process So Far
- A Whole Day of Testing
- A Nice Break At Least!
- The Healing Process, The Switch On, The Screening and The Trial
- The White Bear
- Mid-Trial Visit
- The Re-Randoming!
- In the Dark
- Clinical Trial Finished!
- Minor Update 🙂
- A General Update
(Apologies if I have missed any but I think that they are all there.)